The National Asthma Patient Alliance and the Asthma Society of Canada continue to be active in representing the interests of the more than 3 million Canadians with Asthma. In 2013 we have released a new patient resource entitled Breathe Easy: Self-Advocacy Guide for Canadians with Asthma. This 36-page handbook serves as a guide through the complex healthcare systems and explains about the people who can help you control your asthma. Additionally, we are currently developing a new advocacy program AsthmaPAC (Asthma Patient Advocacy Committee) which will serve to coordinate regional and provincial advocacy campaigns on behalf of people with asthma.
Earlier this summer, the Asthma Society of Canada launched a comprehensive survey of Canadians adults with severe asthma. The study will provide an up-to-date understanding of severe asthma in Canada looking at the prevalence, burden, and needs and expectations of patients with asthma further asking questions on motivation, or lack thereof, for compliance and adherence to asthma management plans. This is the first step towards establishing national and provincial/territorial perspectives on the social and economic impact of severe asthma in Canada that can be used by governments and policy makers in Canada to address asthma.
5th Anniversary - NAPA - August 19, 2012
The National Asthma Patient Alliance (NAPA) held a meeting of its Patient Executive Committee in conjunction with the World Congress of Asthma on August 19, 2012 in Quebec City, Quebec, Canada. The meeting was a celebration of the 5th anniversary of the creation of NAPA and served as an opportunity for the Executive Committee to evaluate the past successes of the Alliance, discuss on-going programming, future growth and set new priorities moving forward.
The meeting was hosted by the Asthma Society of Canada with the support of Merck Canada. In addition to the various discussion sessions which took place throughout the day, representatives from across Canada heard a presentation from Antje Fink-Wagner, Executive Director of the Global Allergy and Asthma Patient Platform (GAAPP).
Discussion sessions included:
- NAPA at Five: Have we fulfilled our original mandate?
- Education and Advocacy: How does NAPA help people with asthma live healthy and active live through individual’s education and awareness and community action?
- Getting Involved: How do we increase membership and member involvement in NAPA activities through programming and communications?
- Moving forward: what should the next five years look like?
Additionally, NAPA participated in the GAAPP Symposium entitled The Patient Voice, Allergy and Asthma Patient Activities around the World which was co-chaired by Asthma Society of Canada President & CEO Dr. Robert Oliphant. NAPA was represented by GAAPP Vice-Treasurer, and NAPA Executive Committee member, Rob Lanteigne, who gave a presentation on NAPA activities entitled Moving Asthma Issues forward, National Asthma Patient Alliance and experiences with Patient Engagement, Results of a Survey of Canadian Asthma Patients.